Creating Calm - What works for me!

Create Calm for yourself

·         Our journey is long.

·         Know who you are.

·         Be at peace with your best.

·         Know that we all struggle, in different ways. 

·         Reflect, take time and love yourself and your family.

Create an Outstanding Team of Service Providers / Doctors

·         You are the manager / leader.

·         Define the common purpose for a team.

Examples:  Keep your child alive.  Avoid certain treatment.  Achieve certain treatment.

·         Define performance goals.

Examples: No hospitalization rule.  Quality of life.  Growing and meeting expectations.

Create Calm from Papers

·         Power of One

·         Keep them in 1 place (bin, room, file cabinet)

·         Review, Purge if possible 1 per year

·         Try to keep it contained in 1 place 

·         Get them from the hospital (be diligent about requesting speedier service)

·         Scan them! Create pdf files

·         Keep on your computer or external drive.

·         Email to doctors, therapists, teachers!