How we stay calm while traveling!!....

Here's a post I just helped write for Wonderbaby website:

http://www.wonderbaby.org/articles/traveling-with-a-medically-complex-child

Piloting The Journey - for 2013 CHARGE Syndrome Conference

In preparation for the 2013 CHARGE Syndrome Conference, I'm posting one of my poster session topics to this website.  These are slides created for the topic "Piloting The Journey".  These slides helped me adjust my self perception and work towards key goals for my life and children.  Hopefully you'll find them useful as well:
Google Document / Powerpoint Presentation version:
https://docs.google.com/file/d/0B64Ogfb0stchWHg4cHFnSWlTcm8/edit?usp=sharing
PDF Document version:

https://docs.google.com/file/d/0B64Ogfb0stchaHdONUNjblJlX2c/edit?usp=sharing

See Article on Wonderbaby - Stay Organized

Amber Bobnar, creator of Wonderbaby, asked me to write a blog post about how I created an organization scheme for Alexis' medical records.
Here it is:
http://www.wonderbaby.org/articles/stay-organized

It's short, straightforward and even includes links to the documents that I use.  Feel free to comment on this post or on Wonderbaby page.  Please email me if you want Alexis' file, I'm happy to share it!

Catherine

Respite House

Respite in the Woods - Mountain Top Town House for Respite or Relaxing

We purchased this condo in 2004, two years before Alexis was born.  We skied every day each weekend the year before I was pregnant with Alexis.  Then lots changed - we still go up, but we don't go up as often as we'd like.  We'd like for people to rent and use our condo.  We get a lot of peace and quiet from being up there.  It's surrounded by mountains and convenient to lots of activities in the White Mountains.

https://www.airbnb.com/rooms/791325

Let me know if you have any comments.  I'm suffering from one of those "I do too much" colds, so I'm not inspired to write a bunch tonight.
Catherine