Create Calm for yourself
· Our journey is long.
· Know who you are.
· Be at peace with your best.
· Know that we all struggle, in different ways.
· Reflect, take time and love yourself and your family.
Create an Outstanding Team of Service Providers / Doctors
· You are the manager / leader.
· Define the common purpose for a team.
Examples: Keep your child alive. Avoid certain treatment. Achieve certain treatment.
· Define performance goals.
Examples: No hospitalization rule. Quality of life. Growing and meeting expectations.
Create Calm from Papers
· Power of One
· Keep them in 1 place (bin, room, file cabinet)
· Review, Purge if possible 1 per year
· Try to keep it contained in 1 place
· Get them from the hospital (be diligent about requesting speedier service)
· Scan them! Create pdf files
· Keep on your computer or external drive.
· Email to doctors, therapists, teachers!